Hello to all of my wonderful readers! Hope you all had a great weekend!  Today, I have another Chandler-post for you guys. When I first got my beloved friend, I wrote a post about my first experiences with him. If you missed it, you can…

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Hello everyone! I would like to take this opportunity to introduce someone to all of  you. I have a new friend. He came into my life only a few days ago and my life hasn’t been the same since. He definitely got things going straight…

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Hello to all! Hope you’re all doing well! This new post is something I’ve been meaning to write about for a while now.  I’ve talked a bit about my FD before… you know, that condition I have that affects my autonomic nervous system? If you haven’t…

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I know I’ve talked about being “out and proud with familial dysautonomia  (F.D.)” and made it sound oh so determined, but I mean that wasn’t a written contract, right?  Now, I’m not at all saying that I’m ashamed of it or anything, I’m just saying that some…

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As some of you may have seen on my Facebook page, a couple of my F.D. friends have started blogs. I absolutely love interacting with others who also have Familial Dysautonomia (F.D.), because I feel like we understand each other in a special way. I’ve…

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Ever been told that you’re the one who knows yourself best? That you should listen to your instincts and go with your gut and all that? Hearing and saying these things is one thing, but actually following it in your everyday life can be tricky……

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I don’t know about all of you, but I really don’t like the word ‘disabled’. Yes, the label can definitely be useful in a lot of different cases, but I still have issues with this word. Before I launch into my thoughts on all of…

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Having finally opened up about FD has opened up quite a few doors along with it. Spending twenty some odd years of my life hiding my condition from as many people as possible has made for some … let’s just say, interesting… incidents. For starters,…

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It’s almost the end of 2016! Most people are planning their celebrations and coming up with new years’ resolutions around now. Me? Well, along with those things, I’m also rejoicing in a little victory of my own. Remember that post I wrote a little while…

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Now that I’ve bit the bullet and spread the word about my FD-ness, I am free as a bird to ramble about it to all of you. This is definitely something that I have been longing for for quite some time now. For my first…

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