I know I’ve talked about being “out and proud with familial dysautonomia  (F.D.)” and made it sound oh so determined, but I mean that wasn’t a written contract, right?  Now, I’m not at all saying that I’m ashamed of it or anything, I’m just saying that some…

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As some of you may have seen on my Facebook page, a couple of my F.D. friends have started blogs. I absolutely love interacting with others who also have Familial Dysautonomia (F.D.), because I feel like we understand each other in a special way. I’ve…

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Ever been told that you’re the one who knows yourself best? That you should listen to your instincts and go with your gut and all that? Hearing and saying these things is one thing, but actually following it in your everyday life can be tricky……

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It’s almost the end of 2016! Most people are planning their celebrations and coming up with new years’ resolutions around now. Me? Well, along with those things, I’m also rejoicing in a little victory of my own. Remember that post I wrote a little while…

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I wanted to take this opportunity to write a post about the reaction I got from all of you. I cannot even begin to express how touched I was with the out-pour of love and comments I’ve gotten from all my friends. I’d been putting…

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As a teenager, I briefly thought I was bisexual, so I came out as bisexual, not long after, I realized I’m a lesbian and I came out as one. Now, I’m finally coming out as someone who has FD. I usually try to hide this…

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